Schaaf-Yang Family Conference 2026
A family conference covering Schaaf-Yang syndrome research, care, and related health topics.
Marriott Philadelphia Downtown
- Date
- October 9, 2026
- Venue
- Marriott Philadelphia Downtown
- Location
- Philadelphia, PA
TL;DR
- The conference starts October 9, 2026, at the Marriott Philadelphia Downtown in Philadelphia.
- Program topics include research updates, caregiver support, behavioral health, and orthopaedic issues related to SYS.
- The supplied event information does not state registration pricing or expected attendance.
About
The Foundation for Prader-Willi Research organizes the conference. Its listed sessions address family support, SYS research, behavioral health, and musculoskeletal care.
Featured speakers
8 listedAmanda Griffith-Atkins
Marc Ridilla
Christian Schaaf
Patrice Carroll
Elizabeth Roof
Deepan Singh
Jessica Bohonowych
Harold Van Bosse
Venue & travel
Venue
Marriott Philadelphia DowntownQuestions people ask
4 answeredIt starts on October 9, 2026.
It takes place at the Marriott Philadelphia Downtown in Philadelphia, Pennsylvania.
It is most valuable for families and caregivers of people with Schaaf-Yang syndrome, since sessions cover caregiver support, behavior and mental health workshops in small groups, and musculoskeletal care, led by clinicians and researchers such as Christian Schaaf of the University of Heidelberg and orthopaedic surgeon Harold Van Bosse. It also gives families direct access to the research updates and registry findings from the Foundation for Prader-Willi Research; professionals with no link to this rare condition would find it too narrow to justify the trip.
Family conferences like this one are typically casual, with comfortable everyday clothing, and some layers for hotel meeting rooms.
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